{"id":1332,"date":"2026-01-18T13:33:28","date_gmt":"2026-01-18T12:33:28","guid":{"rendered":"https:\/\/assoesna.org\/?p=1332"},"modified":"2026-01-18T14:43:09","modified_gmt":"2026-01-18T13:43:09","slug":"la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation","status":"publish","type":"post","link":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/","title":{"rendered":"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation"},"content":{"rendered":"\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Conf\u00e9rence sur la dr\u00e9panocytose<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Dans le cadre de ses actions en faveur de la sensibilisation aux enjeux de sant\u00e9 publique, l\u2019association ESNA<\/strong> a r\u00e9cemment nou\u00e9 un partenariat avec l\u2019association SOS GLOBI Grand Est<\/strong> et l\u2019association OSSIUM<\/strong> autour d\u2019un projet commun : l\u2019organisation d\u2019une conf\u00e9rence d\u00e9di\u00e9e \u00e0 la dr\u00e9panocytose, intitul\u00e9e \u00ab La dr\u00e9panocytose, une maladie bien r\u00e9elle \u00bb<\/em>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t
<\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Cette conf\u00e9rence, organis\u00e9e \u00e0 la r\u00e9sidence universitaire Paul APPELL de Strasbourg, avait pour objectif de mieux faire conna\u00eetre la dr\u00e9panocytose, maladie g\u00e9n\u00e9tique encore trop souvent m\u00e9connue, malgr\u00e9 le fait qu\u2019elle soit la plus fr\u00e9quente au monde. Elle a r\u00e9uni patients, \u00e9tudiants, professionnels de sant\u00e9 et partenaires associatifs autour d\u2019un temps d\u2019information, d\u2019\u00e9changes et de sensibilisation.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Dans le cadre de ce partenariat, l\u2019association ESNA a apport\u00e9 son soutien en mati\u00e8re de communication<\/strong>, en se chargeant notamment de la conception de l\u2019affiche officielle de la conf\u00e9rence<\/strong>, permettant d\u2019assurer une large diffusion de l\u2019\u00e9v\u00e9nement, ainsi que de la r\u00e9alisation d\u2019une vid\u00e9o de retour<\/strong>, destin\u00e9e \u00e0 valoriser les temps forts de la rencontre et \u00e0 prolonger le message de sensibilisation aupr\u00e8s du public.<\/p>

\u00a0<\/p>

Par son implication, ESNA affirme une nouvelle fois son engagement en faveur de la sensibilisation \u00e0 la dr\u00e9panocytose<\/strong>, aux c\u00f4t\u00e9s d\u2019acteurs associatifs directement concern\u00e9s par cette maladie. Cette collaboration illustre l\u2019importance du travail en r\u00e9seau et de la compl\u00e9mentarit\u00e9 des comp\u00e9tences pour faire avancer la visibilit\u00e9, la pr\u00e9vention et la reconnaissance des maladies g\u00e9n\u00e9tiques.<\/p>

Les associations SOS GLOBI Grand Est<\/strong>, OSSIUM<\/strong> et ESNA<\/strong> se f\u00e9licitent de cette collaboration et partagent la volont\u00e9 de poursuivre ensemble des actions porteuses de sens, au service de l\u2019information, de la solidarit\u00e9 et de la sant\u00e9 pour tous.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Conf\u00e9rence sur la dr\u00e9panocytose Dans le cadre de ses actions en faveur de la sensibilisation aux enjeux de sant\u00e9 publique, l\u2019association ESNA a r\u00e9cemment nou\u00e9 un partenariat avec l\u2019association SOS GLOBI Grand Est et l\u2019association OSSIUM autour d\u2019un projet commun : l\u2019organisation d\u2019une conf\u00e9rence d\u00e9di\u00e9e \u00e0 la dr\u00e9panocytose, intitul\u00e9e \u00ab La dr\u00e9panocytose, une maladie bien r\u00e9elle \u00bb. https:\/\/youtu.be\/m01NqNJIBUk Cette conf\u00e9rence, organis\u00e9e \u00e0 la r\u00e9sidence universitaire Paul APPELL de Strasbourg, avait pour objectif de mieux faire conna\u00eetre la dr\u00e9panocytose, maladie g\u00e9n\u00e9tique encore trop souvent m\u00e9connue, malgr\u00e9 le fait qu\u2019elle soit la plus fr\u00e9quente au monde. Elle a r\u00e9uni patients, \u00e9tudiants, professionnels de sant\u00e9 et partenaires associatifs autour d\u2019un temps d\u2019information, d\u2019\u00e9changes et de sensibilisation. Dans le cadre de ce partenariat, l\u2019association ESNA a apport\u00e9 son soutien en mati\u00e8re de communication, en se chargeant notamment de la conception de l\u2019affiche officielle de la conf\u00e9rence, permettant d\u2019assurer une large diffusion de l\u2019\u00e9v\u00e9nement, ainsi que de la r\u00e9alisation d\u2019une vid\u00e9o de retour, destin\u00e9e \u00e0 valoriser les temps forts de la rencontre et \u00e0 prolonger le message de sensibilisation aupr\u00e8s du public. \u00a0 Par son implication, ESNA affirme une nouvelle fois son engagement en faveur de la sensibilisation \u00e0 la dr\u00e9panocytose, aux c\u00f4t\u00e9s d\u2019acteurs associatifs directement concern\u00e9s par cette maladie. Cette collaboration illustre l\u2019importance du travail en r\u00e9seau et de la compl\u00e9mentarit\u00e9 des comp\u00e9tences pour faire avancer la visibilit\u00e9, la pr\u00e9vention et la reconnaissance des maladies g\u00e9n\u00e9tiques. Les associations SOS GLOBI Grand Est, OSSIUM et ESNA se f\u00e9licitent de cette collaboration et partagent la volont\u00e9 de poursuivre ensemble des actions porteuses de sens, au service de l\u2019information, de la solidarit\u00e9 et de la sant\u00e9 pour tous.<\/p>\n","protected":false},"author":1,"featured_media":1340,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1332","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classe"],"yoast_head":"\nLa dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation - ESNA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation - ESNA\" \/>\n<meta property=\"og:description\" content=\"Conf\u00e9rence sur la dr\u00e9panocytose Dans le cadre de ses actions en faveur de la sensibilisation aux enjeux de sant\u00e9 publique, l\u2019association ESNA a r\u00e9cemment nou\u00e9 un partenariat avec l\u2019association SOS GLOBI Grand Est et l\u2019association OSSIUM autour d\u2019un projet commun : l\u2019organisation d\u2019une conf\u00e9rence d\u00e9di\u00e9e \u00e0 la dr\u00e9panocytose, intitul\u00e9e \u00ab La dr\u00e9panocytose, une maladie bien r\u00e9elle \u00bb. https:\/\/youtu.be\/m01NqNJIBUk Cette conf\u00e9rence, organis\u00e9e \u00e0 la r\u00e9sidence universitaire Paul APPELL de Strasbourg, avait pour objectif de mieux faire conna\u00eetre la dr\u00e9panocytose, maladie g\u00e9n\u00e9tique encore trop souvent m\u00e9connue, malgr\u00e9 le fait qu\u2019elle soit la plus fr\u00e9quente au monde. Elle a r\u00e9uni patients, \u00e9tudiants, professionnels de sant\u00e9 et partenaires associatifs autour d\u2019un temps d\u2019information, d\u2019\u00e9changes et de sensibilisation. Dans le cadre de ce partenariat, l\u2019association ESNA a apport\u00e9 son soutien en mati\u00e8re de communication, en se chargeant notamment de la conception de l\u2019affiche officielle de la conf\u00e9rence, permettant d\u2019assurer une large diffusion de l\u2019\u00e9v\u00e9nement, ainsi que de la r\u00e9alisation d\u2019une vid\u00e9o de retour, destin\u00e9e \u00e0 valoriser les temps forts de la rencontre et \u00e0 prolonger le message de sensibilisation aupr\u00e8s du public. \u00a0 Par son implication, ESNA affirme une nouvelle fois son engagement en faveur de la sensibilisation \u00e0 la dr\u00e9panocytose, aux c\u00f4t\u00e9s d\u2019acteurs associatifs directement concern\u00e9s par cette maladie. Cette collaboration illustre l\u2019importance du travail en r\u00e9seau et de la compl\u00e9mentarit\u00e9 des comp\u00e9tences pour faire avancer la visibilit\u00e9, la pr\u00e9vention et la reconnaissance des maladies g\u00e9n\u00e9tiques. Les associations SOS GLOBI Grand Est, OSSIUM et ESNA se f\u00e9licitent de cette collaboration et partagent la volont\u00e9 de poursuivre ensemble des actions porteuses de sens, au service de l\u2019information, de la solidarit\u00e9 et de la sant\u00e9 pour tous.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/\" \/>\n<meta property=\"og:site_name\" content=\"ESNA\" \/>\n<meta property=\"article:published_time\" content=\"2026-01-18T12:33:28+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-01-18T13:43:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"2048\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Assoesna\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Assoesna\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/\"},\"author\":{\"name\":\"Assoesna\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/#\\\/schema\\\/person\\\/d6f9b8e8ec2d9939cb6d651f517b60b1\"},\"headline\":\"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation\",\"datePublished\":\"2026-01-18T12:33:28+00:00\",\"dateModified\":\"2026-01-18T13:43:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/\"},\"wordCount\":334,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/assoesna.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg\",\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/\",\"url\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/\",\"name\":\"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation - ESNA\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/assoesna.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg\",\"datePublished\":\"2026-01-18T12:33:28+00:00\",\"dateModified\":\"2026-01-18T13:43:09+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#primaryimage\",\"url\":\"https:\\\/\\\/assoesna.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg\",\"contentUrl\":\"https:\\\/\\\/assoesna.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg\",\"width\":2560,\"height\":2048},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/2026\\\/01\\\/18\\\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\\\/\\\/assoesna.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/#website\",\"url\":\"https:\\\/\\\/assoesna.org\\\/\",\"name\":\"ESNA\",\"description\":\"Agir pour un avenir solidaire, inclusif et connect\u00e9\",\"publisher\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/assoesna.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/#organization\",\"name\":\"ESNA\",\"url\":\"https:\\\/\\\/assoesna.org\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/assoesna.org\\\/wp-content\\\/uploads\\\/2025\\\/02\\\/cropped-Fichier-10@4x-3.png\",\"contentUrl\":\"https:\\\/\\\/assoesna.org\\\/wp-content\\\/uploads\\\/2025\\\/02\\\/cropped-Fichier-10@4x-3.png\",\"width\":1506,\"height\":552,\"caption\":\"ESNA\"},\"image\":{\"@id\":\"https:\\\/\\\/assoesna.org\\\/#\\\/schema\\\/logo\\\/image\\\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/assoesna.org\\\/#\\\/schema\\\/person\\\/d6f9b8e8ec2d9939cb6d651f517b60b1\",\"name\":\"Assoesna\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/d2b8aaaf926ba226b54da48867188e380e1e5f8028cd48aec847282f7c1a7679?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/d2b8aaaf926ba226b54da48867188e380e1e5f8028cd48aec847282f7c1a7679?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/d2b8aaaf926ba226b54da48867188e380e1e5f8028cd48aec847282f7c1a7679?s=96&d=mm&r=g\",\"caption\":\"Assoesna\"},\"sameAs\":[\"http:\\\/\\\/assoesna.org\"],\"url\":\"https:\\\/\\\/assoesna.org\\\/index.php\\\/author\\\/assoesna\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation - ESNA","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/","og_locale":"fr_FR","og_type":"article","og_title":"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation - ESNA","og_description":"Conf\u00e9rence sur la dr\u00e9panocytose Dans le cadre de ses actions en faveur de la sensibilisation aux enjeux de sant\u00e9 publique, l\u2019association ESNA a r\u00e9cemment nou\u00e9 un partenariat avec l\u2019association SOS GLOBI Grand Est et l\u2019association OSSIUM autour d\u2019un projet commun : l\u2019organisation d\u2019une conf\u00e9rence d\u00e9di\u00e9e \u00e0 la dr\u00e9panocytose, intitul\u00e9e \u00ab La dr\u00e9panocytose, une maladie bien r\u00e9elle \u00bb. https:\/\/youtu.be\/m01NqNJIBUk Cette conf\u00e9rence, organis\u00e9e \u00e0 la r\u00e9sidence universitaire Paul APPELL de Strasbourg, avait pour objectif de mieux faire conna\u00eetre la dr\u00e9panocytose, maladie g\u00e9n\u00e9tique encore trop souvent m\u00e9connue, malgr\u00e9 le fait qu\u2019elle soit la plus fr\u00e9quente au monde. Elle a r\u00e9uni patients, \u00e9tudiants, professionnels de sant\u00e9 et partenaires associatifs autour d\u2019un temps d\u2019information, d\u2019\u00e9changes et de sensibilisation. Dans le cadre de ce partenariat, l\u2019association ESNA a apport\u00e9 son soutien en mati\u00e8re de communication, en se chargeant notamment de la conception de l\u2019affiche officielle de la conf\u00e9rence, permettant d\u2019assurer une large diffusion de l\u2019\u00e9v\u00e9nement, ainsi que de la r\u00e9alisation d\u2019une vid\u00e9o de retour, destin\u00e9e \u00e0 valoriser les temps forts de la rencontre et \u00e0 prolonger le message de sensibilisation aupr\u00e8s du public. \u00a0 Par son implication, ESNA affirme une nouvelle fois son engagement en faveur de la sensibilisation \u00e0 la dr\u00e9panocytose, aux c\u00f4t\u00e9s d\u2019acteurs associatifs directement concern\u00e9s par cette maladie. Cette collaboration illustre l\u2019importance du travail en r\u00e9seau et de la compl\u00e9mentarit\u00e9 des comp\u00e9tences pour faire avancer la visibilit\u00e9, la pr\u00e9vention et la reconnaissance des maladies g\u00e9n\u00e9tiques. Les associations SOS GLOBI Grand Est, OSSIUM et ESNA se f\u00e9licitent de cette collaboration et partagent la volont\u00e9 de poursuivre ensemble des actions porteuses de sens, au service de l\u2019information, de la solidarit\u00e9 et de la sant\u00e9 pour tous.","og_url":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/","og_site_name":"ESNA","article_published_time":"2026-01-18T12:33:28+00:00","article_modified_time":"2026-01-18T13:43:09+00:00","og_image":[{"width":2560,"height":2048,"url":"https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg","type":"image\/jpeg"}],"author":"Assoesna","twitter_card":"summary_large_image","twitter_misc":{"\u00c9crit par":"Assoesna","Dur\u00e9e de lecture estim\u00e9e":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#article","isPartOf":{"@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/"},"author":{"name":"Assoesna","@id":"https:\/\/assoesna.org\/#\/schema\/person\/d6f9b8e8ec2d9939cb6d651f517b60b1"},"headline":"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation","datePublished":"2026-01-18T12:33:28+00:00","dateModified":"2026-01-18T13:43:09+00:00","mainEntityOfPage":{"@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/"},"wordCount":334,"commentCount":0,"publisher":{"@id":"https:\/\/assoesna.org\/#organization"},"image":{"@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#primaryimage"},"thumbnailUrl":"https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg","inLanguage":"fr-FR","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/","url":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/","name":"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation - ESNA","isPartOf":{"@id":"https:\/\/assoesna.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#primaryimage"},"image":{"@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#primaryimage"},"thumbnailUrl":"https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg","datePublished":"2026-01-18T12:33:28+00:00","dateModified":"2026-01-18T13:43:09+00:00","breadcrumb":{"@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#primaryimage","url":"https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg","contentUrl":"https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg","width":2560,"height":2048},{"@type":"BreadcrumbList","@id":"https:\/\/assoesna.org\/index.php\/2026\/01\/18\/la-drepanocytose-une-maladie-bien-reelle-un-accompagnement-dans-la-sensibilisation\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/assoesna.org\/"},{"@type":"ListItem","position":2,"name":"La dr\u00e9panocytose, une maladie bien r\u00e9elle : un accompagnement dans la sensibilisation"}]},{"@type":"WebSite","@id":"https:\/\/assoesna.org\/#website","url":"https:\/\/assoesna.org\/","name":"ESNA","description":"Agir pour un avenir solidaire, inclusif et connect\u00e9","publisher":{"@id":"https:\/\/assoesna.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/assoesna.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/assoesna.org\/#organization","name":"ESNA","url":"https:\/\/assoesna.org\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/assoesna.org\/#\/schema\/logo\/image\/","url":"https:\/\/assoesna.org\/wp-content\/uploads\/2025\/02\/cropped-Fichier-10@4x-3.png","contentUrl":"https:\/\/assoesna.org\/wp-content\/uploads\/2025\/02\/cropped-Fichier-10@4x-3.png","width":1506,"height":552,"caption":"ESNA"},"image":{"@id":"https:\/\/assoesna.org\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/assoesna.org\/#\/schema\/person\/d6f9b8e8ec2d9939cb6d651f517b60b1","name":"Assoesna","image":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/secure.gravatar.com\/avatar\/d2b8aaaf926ba226b54da48867188e380e1e5f8028cd48aec847282f7c1a7679?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/d2b8aaaf926ba226b54da48867188e380e1e5f8028cd48aec847282f7c1a7679?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/d2b8aaaf926ba226b54da48867188e380e1e5f8028cd48aec847282f7c1a7679?s=96&d=mm&r=g","caption":"Assoesna"},"sameAs":["http:\/\/assoesna.org"],"url":"https:\/\/assoesna.org\/index.php\/author\/assoesna\/"}]}},"rttpg_featured_image_url":{"full":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg",2560,2048,false],"landscape":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg",2560,2048,false],"portraits":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28.jpg",2560,2048,false],"thumbnail":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28-150x150.jpg",150,150,true],"medium":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28-300x240.jpg",300,240,true],"large":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28-1024x819.jpg",1024,819,true],"1536x1536":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28-1536x1229.jpg",1536,1229,true],"2048x2048":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28-2048x1638.jpg",2048,1638,true],"doctio-large":["https:\/\/assoesna.org\/wp-content\/uploads\/2026\/01\/Conf_OSSIUM_\u00a9KossiSEDJRO-28-1320x700.jpg",1320,700,true]},"rttpg_author":{"display_name":"Assoesna","author_link":"https:\/\/assoesna.org\/index.php\/author\/assoesna\/"},"rttpg_comment":0,"rttpg_category":"<a href=\"https:\/\/assoesna.org\/index.php\/category\/non-classe\/\" rel=\"category tag\">Non class\u00e9<\/a>","rttpg_excerpt":"Conf\u00e9rence sur la dr\u00e9panocytose Dans le cadre de ses actions en faveur de la sensibilisation aux enjeux de sant\u00e9 publique, l\u2019association ESNA a r\u00e9cemment nou\u00e9 un partenariat avec l\u2019association SOS GLOBI Grand Est et l\u2019association OSSIUM autour d\u2019un projet commun : l\u2019organisation d\u2019une conf\u00e9rence d\u00e9di\u00e9e \u00e0 la dr\u00e9panocytose, intitul\u00e9e \u00ab La dr\u00e9panocytose, une maladie bien\u2026","_links":{"self":[{"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/posts\/1332","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/comments?post=1332"}],"version-history":[{"count":6,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/posts\/1332\/revisions"}],"predecessor-version":[{"id":1339,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/posts\/1332\/revisions\/1339"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/media\/1340"}],"wp:attachment":[{"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/media?parent=1332"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/categories?post=1332"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/assoesna.org\/index.php\/wp-json\/wp\/v2\/tags?post=1332"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}